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Where Stuff’s At …

Wow, I love the memory of being such an active blogger.

Unfortunately my health has continued to decline and writing has become very difficult for me. I’m learning the speak to text strategy but it’s not the same. I seem to think while I’m typing, so trying to think while speaking feels much more like being put on the spot.

Anyway, I’ve also been extremely unwell over the warmer months, with my health just seeming to get worse and worse. So I just haven’t had the energy to write OR speak a post during this difficult time.

I hate to sound soppy and self-pitying, but I’m not sure this post can come across as anything but?

I really got a bit sad that I wasn’t getting any of my thoughts out there or discussing things with the interesting people I know follow this blog. And I wanted to firstly, start my blogging back up again, and secondly, fill you all in with where I’m at.

So … let the soppy begin …

As I said above, my health has deteriorated. But to be clear, it has deteriorated intensely.

I now have paramedics out every few days, sometimes every second day. I do this when I am extremely syncopal (passing out) and need IV fluids to fill my blood volume again, to prevent the syncopes.

I’ve also had a lot of hospital trips when the paramedics couldn’t stabilise me at home.

And there’s been the occasional admission to hospital for migraines and severe pressure headaches that are un manageable with my medications and also go on for several days.

At the same time, we’ve had a billion other things we’ve been trying to tend to.

One of the things we’ve done that has proven pretty fruitful, is to keep researching the conditions I have. We realised that one of the conditions I have, that has to do with mast cells, is linked, or mirrors (if that makes more sense) someone who is allergic to a huge amount of stuff and whose allergic threshold lowers to the point that they begin having allergic reactions to things they have never reacted to before. So this particular allergic threshold spirals further and further down, creating more and more restrictions in foods, household items like soaps etc., medicines or medical equipment (like the tape they use on cannulas etc.) and environmental factors such as pollens, chemicals, grasses, trees, weeds — all of which I am surrounded by.

From the outside, it basically looks like my body is shutting down on itself.

No. Not a very nice thing for the witnesses to watch or me to be experiencing.

But at least we figured out, through a variety of methods, that a better climate, where the environmental allergens are much less impactful on my body, is what I need — quite urgently.

Every doctor that we speak to urges us to move to a high, dry and cold environment — every. single. doctor.

I have to admit, that was a bit of a shock at first, but the more we researched and talked with doctors and the more we looked back on my life and remembered the times I have been very sick while living in an environment full of things I was allergic or sensitive to, and then we moved to a better environment for me and my health improved dramatically — the more everything began to make more sense.

When you’re trying to explain it to people for the first time it’s really difficult, so hopefully I haven’t just confused the crap out of y’all. 😉😂

But now that that’s done, I feel like it might be easier to just get on with blogging or vlogging without quite so much confusion around why my body is as unwell as it is.

I have had so many posts I’ve wanted to write or videos I’ve wanted to record, about things like the silver linings to being so disablingly unwell, our amazing paramedics, watching how families can bond tighter in these situations as well as all my ballet stuff … which, to be honest, isn’t very much but it’s still my favourite passion and I still want to talk about it.

I’m proud of myself for continuing my exercise regime and my ballet-physio every day (most days.) Even though I only do a tiny amount now, I am holding hope in my heart and determination in my mind, that one day I will be able to do so much more.

Boy, do I have plans, for when I get my health back.

Anyway, we have started a fundraiser for us to hopefully be able to afford to buy a caravan and then we’ll just move into the caravan, in the better environment that we know my body responds well to.

So the fundraiser is at the link: Zoe’s Fundraiser

If you feel you’re in a position to donate to our fundraiser then that’s fantastic. If you can’t donate, you can help just by sharing the fundraising page.

Alternatively you can also like our Facebook page at: www.facebook.com/helpzoegetherlifeback and share the page or posts you like.

Ok. That’s it for now, guys. If you read to the bottom, thank you. You’re a gem. If you didn’t, I just hope you read enough to understand where I’m at, because I won’t be explaining it over and over again.

Much love to you all. I hope you have a wonderful day/night/moment today.

Love,

Zoe xxx

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Dear Dream Seekers

Dear Dream Seekers,

You are wonderful. You are inspiration. You are life being lived.

I love seeing so many adult ballerinas emerging currently. Particularly on Instagram, it’s like watching these beautiful buds of hidden desires start opening their dare-to-dream petals and blossom into the most beautiful, soulful dancers.

Something I have noticed is that there seems to be an ever persistent pressure flowing from within many of the adult ballet students I see.

Inner pressure to be good at something we love is not a new thing. It is natural to want to progress.

And I am no stranger to that inner pressure. I felt it. I breathed it in and out, day and night. And it happily went and killed my love of ballet (for a while.)

And so I feel a little sad when I see people putting huge amounts of pressure on themselves to be better at something they love.

I mean, if you love it, then you should be doing it for love.

Let’s repeat that: If you love it, you should be doing it for love.

I know that you want progress. And I know that the ballet studio is a pretty intense place regarding your progress — indeed, it can sometimes feel like a comparison festival is happening in each class.

Everything you want is a valid desire. Improvement, enjoyment, strength, musicality, memories, flexibilities. It’s up to you what you want to aim for. It’s your life. Your choice. No-one else can, or has the right to, choose them for you.

But please be sure to think about it first. Think about you and what you really want because of how those things make YOU feel.

Don’t look at what someone else is doing and just follow along. God knows, you might wake up ten years from now able to do the splits but not able to dance in the centre. You might then shake your fists in the air and scream at yourself for following the splits trend only because it was what others were doing — and you missed getting your teacher to help you learn some amazing mini-solo piece that feels like heaven to dance.

Don’t set yourself up to one day wreak of regret.

So, with that in mind, what I do hope you do is sit with yourself a while. Ask yourself what you feel in this moment you want to do — like actually do right now — because you never know what amazing idea might have been waiting to flow through you but just hasn’t had the window opened to it before.

Then, ask yourself what you think you might regret NOT doing in twenty years time. I usually get my deepest inspirations flowing from this one.

Then lovingly think about all the things you, your body and mind, are good at doing. Really appreciate those things. If ballet is your thing, maybe you’re really musical and your body just naturally flows with the music, maybe you have lovely hand expressions, maybe you have a sparkly passion, maybe you have strong muscles, maybe you can smile during class (harder for some than others!), maybe you understand combinations, maybe you are flexible, or have lovely feet, or maybe you feel your soul fill up during ballet class.

These are all wonderful elements of what you do and of how you feel. I feel it’s important to fully embrace them. Soak yourself in the things about you and your passion, that you love.

When thinking about what goals to set yourself, or what path to set off on, I think it’s really important to take stock first, of all the wonderful parts of yourself that already exist within your passion.

I would look at what you love doing now, look at what you would regret not doing, and set your path accordingly.

If achieving the splits for ballet is part of that path then set your goals and go for it. If it’s smiling more during class, or learning a combination, or performing — then set your goals and go for them.

But be sure to start your intentional path with the full acceptance of how incredible you already are.

Be sure that you don’t discount all of your gloriousness and just focus on what you cannot yet do. If you do that you will be starting your journey with a destructive cycle of focusing on your downfalls. You should be real about yourself. But leave the negativity at the door. If negative self-worth is already an issue for you then I would suggest adding that to your goals — “Learn to love myself for all that I am.” That, and if neccesary, see a therapist, because honestly, that bullshit will become a serious obstacle to you fully realising your dreams.

So, in summary…

1) Align your goals with what YOU enjoy doing and what you feel you will regret not doing.

2) Make sure to begin your path to your goals/dreams/passions swimming in self-appreciation for all the wonder you already are.

Always remember why you’re doing it.

Always respect yourself for doing it.

Always hold your head high.

Remember,

You deserve to be in the room.

Zoe xxx

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Ballet-Physio Update

A few supine leg stretches. Feels great to be moving again.

Hope everyone is treating themselves fairly, cause you know, unfair treatment of yourself will likely lead you to a place you don’t want to visit.

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A Happy Ambulance Ending

Usually an ambulance call doesn’t qualify as making my day particularly surprising. But today was different.

Today included an ambulance call. And FIVE bags of IV fluid.

I must’ve really looked like shit too, because the paramedics rushed the first two bags of fluid through by squeezing the bags manually — I suppose my repeatedly passing out three times in front of them, helped inspire said manual squeezing of IV bags.

Anyway, the really exciting thing was that they said they watched the video on POTS that I sent them, and it really helped them understand it more. They also said they had sent it through to several other ambulance stations and the head of Ambulance NSW, and they had said they would probably send the video out to most of the NSW stations.

They asked more questions and said they wanted to learn more.

I felt awesome about this.

Watched my negative become a positive.

Going to email the POTS video to my GP next.

Anyway, I’m posting it again, in case it helps anyone recognise the condition in themselves or in someone else.

POTS Video

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When the Repressed Rise

‘Why do gay people need to display their sexuality? Why can’t they just keep it quiet? Why do they need to make a big deal about it?’

I keep hearing this, and other versions of this, regarding other sections of society that have been repressed and are attempting to step forward and be accepted as equals.

I’ve heard it about the Black Lives Matter campaign, that some feel should be ‘all lives matter.’

I’ve heard it in relation to feminism as well.

‘Why do women have to rave on and on about how they were treated in the past? Or ‘pull the woman card?’

So, here’s my attempt at an explanation.

There’s a genie in a bottle story — I’m fuzzy on the details but my version goes like this…

If you take a genie and you put it in a bottle and leave it there for 2 weeks, then let it out, it’s going to be relieved to be out of the bottle, it’s going to be relieved to be able to move around and to feel free again. It may even thank you for letting it out.

If you leave the genie in the bottle for 6 months, then you let it out, it’s gonna be relieved to be out and to have its freedom, but it’s also gonna be a little pissed at you for squeezing it into the bottle in the first place and leaving it there for so long.

If you leave the genie in the bottle for 2 years, it’s gonna come out and primarily be pissed at you for leaving it in there so long. It’s gonna be angry, upset and hurt. Maybe even confused as to why you did this to it.

If you leave the genie in the bottle for 10 years, it’s gonna come out mad as hell. It just lost 10 years of its life. A decade of feeling like no one gives a shit about it. A decade of feeling like it isn’t important and of not being heard.

At this 10 year mark, before the genie decks you, it’s probably gonna scream every obscenity at you, and attempt to get you to understand how you’ve made it feel.

It will probably want you to acknowledge what you’ve done and maybe even want to get some kind of redemption or compensation for it.

Then it will never talk to you again. And it will only ever remember you as the arsehole who locked it in a bottle for ten years.

——–

Imagine, then, what the genie might feel and want to do if you left it in the bottle for thousands of years.

Thousands, of years.

The genie is not going to be mad as hell, it’s going to be explosive.

It’s going to be outraged.

It isn’t going to feel like the fight is over just because it’s out of the bottle. It’s going to want justice. It’s going to want you, the bottler, to be held accountable.

I can see, then, why some people might think it’d be easier not to let the genie out of the bottle now, after those thousands of years.

If you’ve left it in there for so long, and you know how outraged they may be if you let them out, then you know they may be so disruptive once let out.

Much less mess if we just keep the lid on it, right?

Well, for some, sure.

But when we shift our minds from the genie analogy to our very real social minorities, then it’s no longer just a story about a genie.

Now we are talking about humanity. And we should see it as a humanity — because we ARE talking about humans.

You cannot repress people for just being who they were born as — for just not being born, a man, or a heterosexual, or white. You can’t repress people for that, and then expect them to not fight back, get angry, want justice, make noise, and seek redemption and acknowledgement at some point.

At some point they’re going to rise. Come out of their metaphorical bottles.

And you can’t expect them to not dance in the streets and rejoice publicly when they make progress in their quest to be seen as equals.

So, the very act of wanting a once repressed person to repress their joy when they are no longer repressed, is ironic and nonsensical.

I hope, in moving forward, that I am witness to many more public displays of love and joy when the repressed rise, become seen, heard and accepted.

I look forward to seeing dancing, singing, hugging, kissing, confetti, and loads of loud and disruptive displays of celebration as each step of equality is taken.

With understanding and compassion to others, no matter how different they look from us, then we can change.

If we all do this, maybe anything is possible?

Zoe xxx

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Uncomfortable Truths. Part 2.

(This is a slightly rehashed post of an older post. Just had some extra thoughts I wanted to add.)

Pictures speak a thousand words but sometimes they hide a thousand more.

All the social media platforms we all use are so great in connecting us with other people travelling a similar journey or following someone who inspires you or being able to inspire others yourself.But with these social media platforms can come  the temptation to create a facade of your life because all the snap shots you post from small moments in your days combine to create a big picture that looks like you’ve got it all together.

Social comparison is not a new thing. But it’s a growing epidemic because there are so many more ways we can socially compare ourselves to others now. And I think sometimes we can use it to hide the uncomfortable truths about ourselves that either we are afraid to share, or we think others are afraid to see.

Unfortunately, there is so much shaming from society about so many parts of our lives, that it can become impossible to feel okay about ourselves.

So I’d like to start sharing my uncomfortable truths more. And here is my first…

One of my chronic health conditions causes muscle tremors. They’re always there but vary in severity. Sometimes I wake up like this and can barely hold a cup of tea, and sometimes they are milder. 
They affect my whole body. 

They are always this severe or worse about 10minutes into any physical exertion. Imagine the shaky legs you feel after an intense workout, except your muscles are actually spasming. All over your body, and rather than being a feeling but not something visible, your limbs are visibly tremoring/shaking/wobbling around. So people in your real life can see and they’re staring and wondering what’s wrong with you.

But in just a photo (that you can use on social media – that you can use to portray yourself a certain way), you can, to satisfy that extremely self conscious part of yourself, make it look like that isn’t a true part of your life — another uncomfortable truth.
That’s my first uncomfortable truth.

I was mindful about posting this. 

But fuck it. I don’t want to be seen as perfect because I’m not perfect. 

I’m far from perfect, and so is life.

Just because Mother Nature can cause intense damage, doesn’t mean you would deny that she is also overwhelmingly beautiful! 
As are we. Flawed and fabulous. 😉 

I may struggle and fall and fail, but I will keep trying. And it is in the trying that lay my success.  I hope I have the courage to keep posting more of these uncomfortable truths. Because I want them to become comfortable truths. 

Because it is okay that I am who I am and my body does what it does. This should not be something I feel ashamed of.
I’m going to hashtag these posts #uncomfortabletruth and #loveyourtruth

If anyone else feels like they want to share one of their uncomfortable truths, that would be awesome. I’d love to hear it, so please tag me in your post. You will not be shamed by me. 

I will support you and love you regardless, because your struggle is part of what makes you who you are, the whole you, and the whole you deserves love. Not just the social media presented you.

This post, and any future Ines like it, are not to generate pity, they are to generate solidarity among each other, that we will not be defined by social comparison any longer. And that we are strong, amazing individuals, who are living our journeys and respect the challenges that each of us face.

And if I lose followers from all this then so be it. I’d rather promote self-love and acceptance with two followers, than self-abuse with thousands.

Love (and a soft place to land) to all.
Z. Inez xxx
P.S, I leave you with one of my recent mandalas…

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Your Beautiful Glorious Self

You may think you need to be better.

But you don’t.

You may think you need to be more like someone else. 

But you don’t.

You might feel inadequate in so many areas of your being that you feel you will never be enough for anyone.

But you aren’t. And you are.

You may feel like you’ll never measure up.

But you already do.

You might look around you and only see others doing it better.

But that’s not the truth.

You may feel like you’re falling short. Losing face. 

But you’re not.

You may feel like everyone around you, everywhere you look, are on incredible trajectories towards imminent success while you’re still trying to figure out whether you’re an over or under person when it comes to your toilet paper.

But they’re probably not. And it’s okay if you’re either or both! 😉

Those who have seen my health issues know that things have been really tough for me. 

I could easily think of myself as having a harder time than others. I could easily choose to feel that others have been dealt fantastic hands while I’ve not even been  dealt one full hand. But firstly, thinking that way serves me no purpose. It doesn’t help me at all. And secondly, it’s all relative: there are others who are facing much harder challenges than I am.

You see, I have learnt that comparison is poison. It only creates anger, contempt, jealousy and a whole lot of other negative emotions. And it’s completely unnecessary. So we can opt out.

We can opt out.

I want to hug the world right now. I want to tell you all, whatever your battles, whatever your goals, to please stop believing that other people have it miraculously easier than others.

I want to especially tell the world that your self-worth does not lie in where you measure up against the people around you. 

Your self-worth is measured purely on the value you give yourself. 

The only person who gets to decide what you’re worth is you.

Do you hear me?

YOU GET TO CHOOSE!

You! No one else. Just you.

And the true beauty of it all is that no assessment is needed.

You’re worth the fucking world, because you were born. You deserve love, because you were born. You deserve respect, because you were born.

Don’t start assessing yourself. That’s being an arsehole to yourself. Don’t do that. 

Seriously, no assessment needed. You’re awesome. Just as you are. You’re doing what you do, aiming for goals, attempting this thing called life, in your way, how you see fit. 

You can do life, the way it feels right for you. 

Because living life by someone else’s rule book sucks a bag, and is completely unnecessary.

If you start doubting your ability to just be you, remember…

Your beauty lies in your flaws. 

Your true self can only shine in your vulnerability.

You are accessible through your mistakes.

Absolutely. Every. Single. Person. On. The. Fucking. Planet. Fucks. Up. All. The. Fucking. Time.

Most people are just scrambling hard to hide their mistakes.

But they’re making them. Oh, boy, are they making them!

It’s impossible to not make mistakes, to not have flaws, to not be imperfect.

So, world, take a breath. 

Give yourself permission to be you. 

No comparisons needed.

No comparisons wanted. 

Just be your beautiful, glorious, unique self. 

xxx

P.S: photo of me, being me…